NORMAN, Okla. —
In February, Daniel’s name finally came up on the list. A care worker began coming by to work with Daniel in the daytime, giving Kathleen a much-needed break.
With the waiver, plans were made for architectural changes, including adding a new wheelchair ramp and a track system to help transport Daniel around the house.
Those projects wouldn’t get done.
About two months after emerging from the list, Daniel went into cardiac arrest and died on April 4.
Ferguson said he doesn’t know if getting the waiver earlier would have extended Daniel’s life, but it would have made his and his parents’ lives easier.
Oklahoma Watch is a nonprofit organization that produces in-depth and investigative journalism on important public-policy issues facing the state. Look for more NORCE coverage in Enid News & Eagle’s print and online editions on Monday.