The Enid News and Eagle, Enid, OK

Community News Network

November 29, 2012

Loving a child on the fringe

(Continued)

PARIS —

This scruff-holding is more than physical; it is medical and mental. After spending her first year of life with serial lung infections, Eurydice evolved a frequently fatal leukemia — another risk factor of Down syndrome, albeit a rare one.

Six months of outpatient blood transfusions gave way to seven months of inpatient chemotherapy. During this period there was no exit from the hospital isolation room for either of us. Several times Eurydice hovered on the edge of death. She lost her long chestnut-colored locks and saw her satin baby chest carved up to make room for three consecutive catheters. Still today, there is a garish scar over her heart across which — either in obedience to a subconscious sense of theater or in memory of the nurses who applied disinfectant to her wound — Eurydice likes to smear blood-red lipstick.

It is sometimes said — and Solomon's book often echoes this bias — that autism is mysterious, Down syndrome is not. Autists are prodigies, introverts, misunderstood; people with Down syndrome are just dumb and dull. And yet, Eurydice has always been mysterious to me. To this day she does not speak — or, rather, she does not speak any publicly recognized language. But she has an enormous amount to say, uncanny capacities for observation, and startling social intelligence. In the French-English-German universe she inhabits, she has invented a vernacular all her own in which she makes orations so self-assured, well-inflected, and precisely punctuated by rhetorical gesticulation that strangers often inquire which language it is she's speaking.

Wherever she goes, she brings people together — imperiously gesturing to cantankerous couples to sit down together and lifting their palms onto each others' thighs, reconciling warring classmates by joining their hands, and charming child-leery adults with flirty smiles and studious imitations of their idiosyncrasies. Her gifts are the opposite of my own: Where I am shy, she is bold; where I am good with (known) words, she is good with drama, dance and music; where I am frightened of groups, she loves them, and the children in her preschool compete hard to sit by her side at lunchtime as the nurses in her hospital petitioned to be assigned to her room.

Text Only
Community News Network
  • Why a see-through mouse is a big deal for scientists

    A group of Caltech researchers announced in Cell Thursday their success in making an entire organism transparent. Unfortunately, this isn't any kind of "Invisible Man" scenario: The organism in question is a mouse, and the mouse in question is quite dead.

    July 31, 2014

  • Screen Shot 2014-07-31 at 2.12.55 PM.png VIDEO: Five-year-old doesn't want her brother to grow up

    Sadie, an adorable 5-year-old from Phoenix, wants her brother to stay young forever, so much so that her emotional reaction to the thought of him getting older has drawn more than 10 million views on YouTube.

    July 31, 2014 1 Photo

  • lockport-police.jpg Police department turns to Facebook for guidance on use of 'negro'

    What seems to be a data entry mistake by a small town police department in western New York has turned into a social media firestorm centered around the word "negro" and whether it's acceptable to use in modern society.

    July 31, 2014 3 Photos

  • The virtues of lying

    Two computational scientists set out recently to simulate the effects of lying in a virtual human population. Their results, published in the Proceedings of the Royal Society B, show that lying is essential for the growth of a cohesive social network.

    July 31, 2014

  • Sunburn isn't the only sign of summer that can leave you itchy and blistered

    You've got a rash. You quickly rule out the usual suspects: You haven't been gardening or hiking or even picnicking, so it's probably not a plant irritant such as poison ivy or wild parsnip; likewise, it's probably not chiggers or ticks carrying Lyme disease; and you haven't been swimming in a pond, which can harbor the parasite that causes swimmer's itch.

    July 30, 2014

  • Survey results in legislation to battle sexual assault on campus

    Missouri U.S. Sen. Claire McCaskill joined a bipartisan group of senators Wednesday to announce legislation that aims to reduce the number of sexual assaults on college campuses.

    July 30, 2014

  • An alarming threat to airlines that no one's talking about

    It's been an abysmal year for the flying public. Planes have crashed in bad weather, disappeared over the Indian Ocean and tragically crossed paths with anti-aircraft missiles over Ukraine.

    July 30, 2014

  • Sharknado.jpg Sharknado 2 set to attack viewers tonight

    In the face of another "Sharknado" TV movie (the even-more-inane "Sharknado 2: The Second One," premiering Wednesday night on Syfy), there isn't much for a critic to say except to echo what the characters themselves so frequently scream when confronted by a great white shark spinning toward them in a funnel cloud:
    "LOOK OUT!!"

    July 30, 2014 1 Photo

  • 20140729-AMX-GIVHAN292.jpg Spanx stretches into new territory with jeans, but promised magic is elusive

    The Spanx empire of stomach-flattening, thigh-slimming, jiggle-reducing foundation garments has expanded to include what the brand promises is the mother of all body-shaping miracles: Spanx jeans.

    July 29, 2014 1 Photo

  • Medical marijuana opponents' most powerful argument is at odds with a mountain of research

    Opponents of marijuana legalization are rapidly losing the battle for hearts and minds. Simply put, the public understands that however you measure the consequences of marijuana use, the drug is significantly less harmful to users and society than tobacco or alcohol.

    July 29, 2014